So we finally got an appointment for neurology. It was set for March 12th @ 9:30. Now my doctor said the first available MRI time is March 12th at 1:30. Now they want me to try and reschedule the appointment for the neuro that took me six weeks to get! Can we say frustrating. On top of that of course I try and make another appointment and no one ever answers or returns my calls. So now we are scheduled for MRI on March 12th. We are on the cancelation list for this too. Maybe we will be blessed with an earlier date. My doctor nor I have been able to contact the neuro yet. Ugh! We need MRI to take to neuro so MRI must come first. Everyone has been dragging tail on this and I am one upset mama but I've given it to God and refuse to stress.
On another note Ezra worked extremely hard in therapy today and if I can figure out how to upload pics an video I will. I was so proud of him today :)
Please continue to pray that all these complications be worked out. Praying for his right side to strengthen. Also pray for me. Thanks and I appreciate those of you who are keeping up with us and lifting us up I prayer.
Tuesday, February 18, 2014
Sunday, February 2, 2014
Another Step in the Journey
We were referred to a pediatric orthopedic Dr he was awesome. The good news is he didn't find anything. No scoliosis and no hip dysplasia. Yes this can happen in people as well as dogs. He says that going to the neurologist is the next step in our process. He also said if we get referred to a genetic specialist to keep him in mind. A lot of times they want to do a muscle biopsy and he would be happy to help.
It is a relief that everything looks normal with his bones. Now we are still waiting with no word from the neurologist. It is over a month with one missed call and five unreturned phone calls. I have left a message every week and no response. How could this be? Do these people have children of their own? I know that I am not in control and God is teaching me patience through this. As a mother I want my answers now.
Through this waiting God is giving me peace that no matter what the outcome or diagnosis may be Ezra is special. Not just in his uniqueness but God has divinely placed His hand on this child and has a great purpose for Him. The devil would love to see him and us defeated but we will not be. My God always wins and He is going to heal Ezra for His glory. Whether that be tomorrow or be a life long healing I have the confidence and peace that God is in control no matter what.
It is a relief that everything looks normal with his bones. Now we are still waiting with no word from the neurologist. It is over a month with one missed call and five unreturned phone calls. I have left a message every week and no response. How could this be? Do these people have children of their own? I know that I am not in control and God is teaching me patience through this. As a mother I want my answers now.
Through this waiting God is giving me peace that no matter what the outcome or diagnosis may be Ezra is special. Not just in his uniqueness but God has divinely placed His hand on this child and has a great purpose for Him. The devil would love to see him and us defeated but we will not be. My God always wins and He is going to heal Ezra for His glory. Whether that be tomorrow or be a life long healing I have the confidence and peace that God is in control no matter what.
Monday, January 27, 2014
I started this blog to share Ezra's story to a lot of friends and family who have been asking about his journey so far. Ezra was born on October 14, 2012. It was normal pregnancy and a very fast birth. In fact he was born in the hallway because they couldn't get me to the delivery room fast enough. He was so beautiful and so healthy. I ate all the right things and breastfed him for 12 months. He has grown at a normal rate. He is at 75 percentile for height and 25 percentile for weight.
My first concern started around 6 months when a I realized he wasn't turning over yet. I remembered that Jadin had rolled over at 2 months and the girls had both rolled over by 4 months. Everyone encouraged me by telling me he was just taking his time and he was the baby and everyone was helping him so he didn't have to do things himself. When we started giving him a cup he could not hold it by himself until he was over a year. He also did not roll over until he was almost 10 months. He did not sit up until he was 11 months and he still could not sit up on his on. We knew something was not right. We pressed the Dr's and they finally sent me to a wonderful physical therapist. She diagnosed him with floppy baby syndrome and low muscle tone. We began physical therapy right away.
The next step was once a week therapy for one month. We did see some improvement and our long term goal was walking by 18 months. We have seen some goals met. He can get up from laying down and he is finally able to pull up. He will be 16 months on the 14th of February and we still aren't standing so the therapist referred us to a neurologist. This is where it gets frustrating. We have been waiting on a call for over three weeks.
We need specific prayer to get a neurology appointment as soon as possible. We need prayer that they can pinpoint what the problem is so we can help him achieve his goals. We also need to know why he refuses to get into quadraped and has hated tummy time since birth. He tires very quickly and gets very frustrated while doing any kind of therapy. We are praying that he is no pain.
We have an appointment today with a pediatric orthopedic specialist in hopes to have hip and spine xray. Then we will also be getting a MRI done to check for a possible stroke while he was in the womb because he favors the right side of his body. I will continue to update with pics and other stories. Please continue to keep Ezra and our family in your prayers.
My first concern started around 6 months when a I realized he wasn't turning over yet. I remembered that Jadin had rolled over at 2 months and the girls had both rolled over by 4 months. Everyone encouraged me by telling me he was just taking his time and he was the baby and everyone was helping him so he didn't have to do things himself. When we started giving him a cup he could not hold it by himself until he was over a year. He also did not roll over until he was almost 10 months. He did not sit up until he was 11 months and he still could not sit up on his on. We knew something was not right. We pressed the Dr's and they finally sent me to a wonderful physical therapist. She diagnosed him with floppy baby syndrome and low muscle tone. We began physical therapy right away.
The next step was once a week therapy for one month. We did see some improvement and our long term goal was walking by 18 months. We have seen some goals met. He can get up from laying down and he is finally able to pull up. He will be 16 months on the 14th of February and we still aren't standing so the therapist referred us to a neurologist. This is where it gets frustrating. We have been waiting on a call for over three weeks.
We need specific prayer to get a neurology appointment as soon as possible. We need prayer that they can pinpoint what the problem is so we can help him achieve his goals. We also need to know why he refuses to get into quadraped and has hated tummy time since birth. He tires very quickly and gets very frustrated while doing any kind of therapy. We are praying that he is no pain.
We have an appointment today with a pediatric orthopedic specialist in hopes to have hip and spine xray. Then we will also be getting a MRI done to check for a possible stroke while he was in the womb because he favors the right side of his body. I will continue to update with pics and other stories. Please continue to keep Ezra and our family in your prayers.
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