Monday, January 27, 2014

I started this blog to share Ezra's story to a lot of friends and family who have been asking about his journey so far. Ezra was born on October 14, 2012. It was normal pregnancy and a very fast birth. In fact he was born in the hallway because they couldn't get me to the delivery room fast enough. He was so beautiful and so healthy. I ate all the right things and breastfed him for 12 months. He has grown at a normal rate. He is at 75 percentile for height and 25 percentile for weight. 
         My first concern started around 6 months when a I realized he wasn't turning over yet. I remembered that Jadin had rolled over at 2 months and the girls had both rolled over by 4 months. Everyone encouraged me by telling me he was just taking his time and he was the baby and everyone was helping him so he didn't have to do things himself. When we started giving him a cup he could not hold it by himself until he was over a year. He also did not roll over until he was almost 10 months. He did not sit up until he was 11 months and he still could not sit up on his on. We knew something was not right. We pressed the Dr's and they finally sent me to a wonderful physical therapist. She diagnosed him with floppy baby syndrome and low muscle tone. We began physical therapy right away.
     The next step was once a week therapy for one month. We did see some improvement and our long term goal was walking by 18 months. We have seen some goals met. He can get up from laying down and he is finally able to pull up. He will be 16 months on the 14th of February and we still aren't standing so the therapist referred us to a neurologist.  This is where it gets frustrating.  We have been waiting on a call for over three weeks. 
     We need specific prayer to get a neurology appointment as soon as possible. We need prayer that they can pinpoint what the problem is so we can help him achieve his goals. We also need to know why he refuses to get into quadraped and has hated tummy time since birth. He tires very quickly and gets very frustrated while doing any kind of therapy.  We are praying that he is no pain. 
       We have an appointment today with a pediatric orthopedic specialist in hopes to have hip and spine xray. Then we will also be getting a MRI done to check for a possible stroke while he was in the womb because he favors the right side of his body. I will continue to update with pics and other stories. Please continue to keep Ezra and our family in your prayers.